Information about HRA Pharma Rare Diseases events.
Share your colours, Devotion and Support – Rare Disease Day 2022
Living with a rare disease can feel incredibly lonely and challenging, especially as it often takes a long while to get a clear diagnosis or even hear about treatments.
We want the world to see the whole spectrum of rare diseases, which is why our Rare Disease Day campaign in 2022 is aligned with the global campaign #shareyourcolours. It is a vibrant celebration of colour, individual and collective creativity.
Our video aims to help make the 300 million people around the world with a rare disease more visible.
The Rare Care campaign – Rare Disease Day 2021
We want rare diseases to be seen and heard. For the Rare Disease Day on the 28th of February and in collaboration with patients' associations (WAPO, Adrenal Net), our campaign raised awareness with the public, policy makers, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
For our Rare Care Campaign, we used hands to make the shape of a heart and display our messages in public. You can see our Rare Care hands in public places and on social media by watching our video.