We want rare diseases to be seen and heard. Our Rare Disease Day campaign raised awareness with the public, policy makers, industry representatives, researchers, health professionals and anyone else who cares about rare diseases.
By partnering with the endocrine community, we hope to reduce the negative impact of rare diseases, like Cushing’s syndrome, and help improve the quality of life and care for those affected.
Through collaboration with the endocrine community, we aim to raise awareness of rare diseases, like adrenocortical carcinoma (ACC), and help facilitate access to accurate diagnosis, care and support.
We are passionate about improving the lives of patients with rare and ultra-rare diseases.
Discover more about Cushing's Syndrome.
Discover more about Adrenocortical Carcinoma.